Down Syndrome

Rehersals with Motxila 21, Pamplona

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PHOTOGRAPHY “MOTXILA 21” -PAMPLONA

Mila Barricarte and Daniel Muñoz told us about us their experience:

On Thursday, March 23, Mila and Daniel went to photograph Motxila 21 [a band from Pamplona that includes many musicians with Down Syndrome]. “We arrived at 7 a.m. They rehearsed in the district of La Chantrea. Roberto and María José were waiting for us. ” On entering, Daniel says he saw several soccer buddies and Mila who noticed that there were many instruments (drums, a bass drum, a drums, a bass …) and photos of the group: “it was a very cool place.” Daniel also told us: “We were a little nervous, because it was the first time we photographed people we do not know. They played several songs while we took pictures of them. ” Mila says that the camera did not work well, that it tried to shoot but it did not obtain it. Daniel did not dare to approach so many people and so many cables. “We took several photos and stayed for a while to listen as they played. In the end they took a picture of us all together. We had a great time and we would like to repeat. ”

Many thanks to the components of Motxila 21 for giving us the opportunity to photograph them and make us a gap in their calendar that we know they have very tight.

  • MILA BARRICARTE AND DANIEL MUÑOZ Students of the school E.E. El Molino,
  • Photos and text, courtesy of NWN Photo.

 

FOTOGRAFIAMOS A “MOTXILA 21”

Mila Barricarte y Daniel Muñoz nos cuentan su experiencia:

El jueves 23 de marzo, Mila y Daniel fueron a fotografiar a Motxila 21 [una banda de Pamplona que incluye a muchos músicos con síndrome de Down].  Quedamos a las 7. Ensayaban en un local de la Chantrea. Allí nos esperaban Roberto y María José”. Al entrar, Daniel dice que vio a varios compañeros de fútbol y Mila que se fijó en que había muchos instrumentos (tambores, un bombo, una batería, un contrabajo…) y fotos del grupo: “era un sitio muy chulo”. Daniel también nos contó: “Estabamos un poco nerviosos, porque era la primera vez que fotografiábamos a personas que no conocemos. Tocaron varias canciones mientras les hacíamos fotos”. Mila cuenta que la cámara no funcionaba bien, que intentaba disparar pero no lo conseguía. Daniel no se atrevía a acercarse con tanta gente y tantos cables. “Hicimos varias fotos y nos quedamos un rato a escuchar como tocaban. Al final nos hicieron una foto a todos juntos. Lo pasamos muy bien y nos gustaría repetir”.

Muchas gracias a los componentes de Motxila 21 por darnos la oportunidad de fotografiarles y hacernos un hueco en su calendario que sabemos lo tienen muy apretado.

  • MILA BARRICARTE Y DANIEL MUÑOZ Alumnos del colegio E.E. EL MOLINO
  • Fotos y texto, cortesía de NWN Photo.

 

Spanish Dance Troupe Demonstrates Inclusion

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Paco Santos of NWN Photography recently shot the dancers from the Danza Down, Compañía Elías Lafuente in a recent rehearsal. The beautiful images show the great self-esteem of the dancers.
Danza Down, Compañía Elías Lafuente is a company of dancers who have down syndrome. It shows that having an intellectual or physical disability shouldn’t prevent you from doing what you want to do.  The photos show how people feel when they dance.  We see that no matter what kind of disability you have, you can do anything you want to do. When you feel good about what you do, it makes you feel better about yourself.
Santos says of his images, “I like to see how Danza Down, Compañía Elías Lafuente works with dancers with disabilities.  It is beautiful and curious to see how professionals of different arts are engaged in this world, a world that most people do not care about.”
Please enjoy Santos’ photography and leave your comments below.  Visit Danza Down, Compañía Elías Lafuente online for more information.
-Written collaboratively by Anthony DiCostanzo, Anthony DiFato, Steven Filoramo, Joseph Jones, Gregory Perosi, and Dolores Palermo, with editing by Edward Gregory for Life-Wire News Service.
-Photos: Paco Santos, NWN Photography for Life-Wire News Service.
[Spanish translation below]
[Spanish translation by Danza Down, Compañía Elías Lafuente, Troupe]

Danza Down, Compañía Elías Lafuente, Troupe de Baile Español Demuestra Inclusión

Paco Santos de NWN Fotografía recientemente filmó a los bailarines de Danza Down Compañía  Elías Lafuente en un reciente ensayo. Las hermosas imágenes muestran la gran autoestima de los bailarines.

Danza Down Compañía Elías Lafuente es una compañía de bailarines que tienen síndrome de Down. Muestra que tener una discapacidad intelectual o física no debe impedir que usted haga lo que quiere hacer. Las fotos muestran cómo se sienten las personas cuando bailan. Vemos que no importa qué tipo de discapacidad tiene, puede hacer lo que quiera hacer. Cuando te sientes bien acerca de lo que haces, te hace sentir mejor contigo mismo.

Santos dice de sus imágenes: “Me gusta ver cómo Danza Down Compañía Elías Lafuente trabaja con bailarines con discapacidades, es hermoso y curioso ver cómo profesionales de diferentes artes se dedican a este mundo, un mundo que a la mayoría de la gente no le importa”.

Disfrute de la fotografía de Santos y deje sus comentarios a continuación. Visite Danza Down, Compañía Elías Lafuente en línea para obtener más información.

-Escrito en colaboración por Anthony DiCostanzo, Anthony DiFato, Steven Filoramo, Joseph Jones, Gregory Perosi, y Dolores Palermo, con la edición de Edward Gregory por Life-Wire News Service.
-Fotos: Paco Santos, NWN Photography por Life-Wire News Service.

Willowbrook Mile Ribbon Cutting

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Geraldo Rivera helped cut the ribbon to Willowbrook Walk, a mile-long path to honor people who suffered at Willowbrook State School, today, September 14.

The reporter who exposed the horror of Willowbrook was joined by William Fritz and Michael Kress of the College of Staten Island (CSI); Diane Buglioli, Co-Chair of the event and Deputy Executive Director of A Very Special Place; NYS Assemblyman Michael Cusick; and many others, including Bernard Carabello, a former resident of Willowbrook State School who now works a patient advocate for the NYS Office of People With Developmental Disabilities.  

“I came to this place as a local reporter for Channel 7, Eyewitness News,”  Rivera told

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Photo: Meredith Arout for Life-Wire News Service.

reporter Joseph Padalino. “I had some doctors who told me I had to come and see how bad conditions were here.  They got me a key so I could get in and film the conditions, which I did.”

“The problem wasn’t that people didn’t care.” Rivera continued. “The problem was that the whole notion that you could mass-produce care for the developmentally disabled the way you mass produce cars was very deeply flawed.  It was doomed to fail.  It was very archaic and it was primitive and thank God it’s now part of distant history.”

“I’d been at Willowbrook for 18 years!” Carabello told reporter Dolores Palermo. He said it was “bad, bad.  The worst place I ever lived. Geraldo came and asked for me at Willowbrook. And that’s how I got out.  He got me out. Now I work for OPWDD. I’m an advocate. I advocate for people who can’t talk for themselves.”

“I’m just so proud to be a part of this,” Cusick told reporter Gregory Perosi. “…because this will show the history of Willowbrook and what it has become.”

Mr. Padalino observed that if not for people like  Rivera, “I would have been in Willowbrook, but I wasn’t. Thank you very much, Mr. Rivera.”

The Willowbrook MIle is a self-guided tour of the former campus of the State School.  It spans the campus of the College of Staten Island and New York State properties that still house services for people with disabilities.  Stations on the walk include a commemorative Memorial Garden Plaque, Building 29 which housed more than 100 residents, The Willowbrook Archives and Special Collections at CSI, the Institute for Basic Research, and the Elizabeth Connelly Center.

For more information on the Willowbrook Mile and to download their brochure, visit there website at http://willowbrookmile.csi.cuny.edu/about-willowbrook-mile.

– This article was written by the Life-Wire News Service staff, with specific contributions by Anthony DiFato, Anthony Buscarello, Jonathan Chernok, Anthony Kefalinos, Joseph Jones, Dolores Palermo, Joseph Padalino, and Gregory Perosi with Kathryn Carse and Edward Gregory.

Living with Down Syndrome: Eric Schwacke

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This is my story about Down Syndrome.  It is a disability that we have that we cannot over come, but we can overcome our handicap.  I believe that anyone can overcome their difficulties.  Encourage your sons and daughters to overcome their disabilities or difficulties.

  • Eric Schwacke for Life-Wire News Service.

 

Bridget Snedden, Down Syndrome Advocate

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Bridget Snedden is the parent of Alex, a young man from New Zealand who has Down Syndrome. Life-Wire News Service’s Gregory Perosi, Steven Filoramo, Dolores Palermo, and Joseph Padalino interview Bridget about the joys and challenges of raising her son.  Bridget is visiting New York to speak at the United Nations on the occasion of World Down Syndrome Day 2016. She is a board member of Down Syndrome International and past president of the New Zealand Down Syndrome Association.

FTL MODA at NYFW: Fashion w/o Boundaries

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This year’s runway trends were diversity and inclusion at the February 15, 2016 FTL MODA show with models Madeline Stuart, Tiffany Tennille, Shaholly Ayers, Fausto Di Pino, Rebekah Marine, Dionne Michelle, and others. The show featured fashions by Josefa DaSilva, LuLu et GiGi, Dunyah, Adolfo Sanchez, Dear Rain, Mr. Decurtis, and FuMo Bespoke.  Life-Wire correspondents Meredith Arout and Eric Schwacke spoke with musicians Chris Reeder and Meredith O’Connor, Josefa, Dionne and Fausto for their thoughts on this extraordinary fashion event.

Madeline Stuart (left) and Fausto Di Pino (right).  Photo: Meredith Arout for Life-Wire News Service.

#iamnyfw

 

Inclusion in Fashion: FTL Moda Preview

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FTL MODA‘s show at New York Fashion Week celebrates every body with the inclusion of extraordinary models.  Life-Wire News Service photo-journalist Meredith Arout documented the February 13 preview event in this photo set, featuring Madeline Stuart, Rebekah Marine, Shaholly Ayers, and more.

Photos: Meredith Arout for Life-Wire News Servcice.  #IamNYFW